KENAI — He knew about the high possibility of a genetic disorder being passed down to him since his early 20s. Jason Johnston, 33, recalled visiting his grandmother, Clarice Phillips, in a nursing home during that time.
“I don’t remember much except she couldn’t control her body movements and didn’t recognize my mom,” said Jason, who was diagnosed with Huntington’s disease last year. “Didn’t even recognize her own child ... It was pretty hard on my mom.”