Pastor Larry Rorem and Laura Rorem

Pastor Larry Rorem and Laura Rorem

Our daughter lived with FASD for 45 years. This is her legacy.

  • By Laura Rorem
  • Monday, April 16, 2018 6:39pm
  • Neighbors

Each of our children and grandchildren are a special gift. We love them for who they are, and taught them about faith and life. Each of them transforms us beyond our understanding.

Parenthood is an unfolding of realities that break down stereotypes and assumptions. A young parent’s statement: “My kids will NEVER do that!” may slowly or suddenly change to “I love and value them as they are.” We may wish things were different, but unconditional love places equal value on each family member.

Our daughter Tanya once wrote, “Out of all the things I’ve lost, I miss my mind the most.” She taught us that people born with FASD, suffer from Schizo-Affective Disorder and substance abuse have much to contribute to society. She lived through homelessness, prison, unimaginable trauma and indignities. She was seen by most as a “throw away.” Unconditional love could not remove the pain or heal the wounds, but love, caring and compassion were always needed. To us she was a precious gift from God.

ADVERTISEMENT
0 seconds of 0 secondsVolume 0%
Press shift question mark to access a list of keyboard shortcuts
00:00
00:00
00:00
 

With all her difficulties, she described life this way: “I was adopted by Laura and Larry Rorem at 8 months old. Their goal was give a child love and a home, teach about God, and give them values. I was raised by Laura and Larry Rorem. What I learned is — forgiveness, respect, kindness and God are ALL ABOUT LOVE.”

She was deeply aware of God’s grace and unconditional love. During painful times, she sought a faith community seeking unconditional love and acceptance. Each congregation I served wrapped their arms of love around her and us. Prince of Peace in Michigan was there for her and us when we received her first mental illness diagnosis. The same was true during our 17 years at Shepherd of the Valley in Juneau. Upon retirement, Resurrection Lutheran accepted her and us with open arms. When homeless in Anchorage, she found her way to Central Lutheran. In spite of frequent psychotic breaks, faith gave Tanya the foundation to face challenges and obstacles that her “no fault” disabilities placed before her.

Tanya illustrated and wrote about her experiences with mental illness. As a person of faith she stood up to many people who told her, “If you had more faith, you would not have these problems.” Knowing this was wrong, she once wrote: “Why do I believe in God? For Strength! If I only needed faith, I would be lost. God is in my soul and gives me strength. His gift is unconditional love. That’s what is special. I did not work for it. I received it. My faith is strong, so am I. God’s gift is free.”

The last two years of Tanya’s life was a struggle with terminal cancer. We had insightful conversations about death. She welcomed death, but was scared and wanted our presence on her long journey to her final breath. Unlike sudden death, cancer allows dying to be a deeply spiritual relationship experience that is purposeful, meaningful, and sacred for the one dying and their caregivers.

Tanya’s “living and growing” in our presence is over. Her “Good Friday” life of struggle ended with us at her side “letting her go” into the loving arms of Jesus, her grandparents and aunt. Her physical presence ended on Feb. 23, but she lives on as a major influence on how we understand and value all people. She died during Lent, but we chose to celebrate her life in the season of Resurrection on April 21 at 1:30 p.m. at Resurrection Lutheran.

We were privileged to be part of her journey. Her “Good Friday” life on the margins of society was one of hope in the promises of the Resurrection.

Tanya taught us to better understand the “the least of these.” She taught us to put ourselves in their footsteps with compassion — to enter into their pain and become empathetic, breaking down the “we/them” barriers and becoming “us.” She taught us to be understanding, compassionate, empathetic and passionate advocates. This is her legacy.

As Jesus instructed, “Truly I tell you, just as you did it to one of the least of these, who are members of my family, you did it to me.” Matthew 25:40.

 


 

• Pastor Larry Rorem is a retired Evangelical Lutheran Church in America pastor living in Juneau. Laura Rorem is a member of the JAMHI Health and Wellness Board. Both are advocates for people with FASD and their families. “Living & Growing” is a weekly column written by different authors and submitted by local clergy and spiritual leaders

 


 

More in Neighbors

Just-baked cinnamon rolls ready to serve. (Photo by Patty Schied)
Cooking For Pleasure: Easy cinnamon rolls

My father really loved cinnamon rolls. In his later years I would… Continue reading

The Rev. Tim Harrison is the senior pastor at Chapel by the Lake. (Courtesy photo)
Living and Growing: The numbers tell the story

I love numbers and math. One of my first career aspirations was… Continue reading

Page Bridges of Holy Trinity Episcopal Church in Juneau. (Photo courtesy of Page Bridges)
Living and Growing: Spiritual self defense

True spiritual power is quiet, under the radar. One beautiful thing about… Continue reading

A bowl of gumbo. (Photo by Patty Schied)
Cooking For Pleasure: Shrimp gumbo for Mardi Gras

I love gumbo. Several years ago I was lucky enough to go… Continue reading

Nuns wait for a seating area to be opened before a recitation of the rosary for Pope Francis’ health at St. Peter’s Square in Vatican City, on Monday night, Feb. 24, 2025. (James Hill/The New York Times)
Living and Growing: Let us journey together in hope

Friends, we are a little over a week away from the beginning… Continue reading

Fresh rainwater sits on top of the ice at Auke Lake. (Michael Penn / Juneau Empire file photo)
Gimme A Smile: Looking for spring in all the wrong places

Is it spring yet? Is it spring yet? We’re through Valentine’s Day,… Continue reading

Tari Stage-Harvey is the pastor of Shepherd of the Valley Lutheran Church. (Photo courtesy of Tari Stage-Harvey)
Living and Growing: Seeing is believing

Christians are nearing the time of Lent, 40 days of repentance and… Continue reading

Cooked Chinese-style fried rice. (Photo by Patty Schied)
Cooking for Pleasure: Chinese-style fried rice

At most of the Chinese restaurants I’ve eaten at over the years,… Continue reading

Adam Bauer of the Local Spiritual Assembly of Bahá’ís of Juneau. (Courtesy photo)
Living and Growing: Gathering to share ‘Faith in the Future’

First, I would like to take a moment to acknowledge that we… Continue reading

Guided by generations of traditional knowledge, Indigenous harvesters carefully dry black seaweed along the shoreline, demonstrating how cultural values and sustainable practices ensure these vital marine resources thrive for future generations. (Photo by Bethany Goodrich)
Woven Peoples and Place: A conversation with regional catalysts for economic development and mariculture

A growing contingent of Southeast Alaskans are driving local economic transformation toward… Continue reading

Page Bridges of Holy Trinity Episcopal Church in Juneau. (Photo courtesy of Page Bridges)
Living and Growing: The light of the world

“Arise, shine, for your light has come, and the glory of the… Continue reading

Orange apricot muffins ready to eat. (Photo by Patty Schied)
Cooking For Pleasure: Orange apricot muffins for breakfast

A few years ago when I had a bag of oranges and… Continue reading